Global Health Council (GHC36): Trust & social desirability in m-health
Posted by | Posted in Conferences, Design, Global Health, HIV/AIDS, Infectious Diseases, Innovation, Microfinance, Mobile Phones, Research | Posted on 28-05-2009
This morning I attended “On the Move: Mobile Health” (session D2). From the conference website:
Presenters Discuss: the overall strategic approach to mHealth taken by the Millennium Villages Project and use the experiences of pilot testing and implementing mHealth activities and applications in Ruhiira Uganda (Uganda, Africa Region); the present use of mobile phone technology in the microfinance industry (MFI) and new and expanded applications for mobile-based services (India); why the mHealth Alliance was created and how it will develop and incubate the framework and solutions for the nascent mHealth sector (global); and how rapid HIV tests and handheld technologies are being used for population-wide door-to-door HIV screening (Kenya).
- Moderator: Neal Lesh, PhD – D-tree International
Presenters and talk titles:
- Anita Katusiime – Millennium Villages Project-Uganda, Mobile Health Implementation Experiences
- Janine Schooley, MPH – Project Concern International, Connecting India to Disconnect Poverty and Improve Health
- Mitul Shah – United Nations Foundation, Inc., Development of a Mobile Technology Alliance for Health [multi-country]
- Martin Were, MD – Regenstrief Institute, Inc and Indiana University, Incorporating Technological Advances In Population-Wide HIV Screening [Kenya]
The issue of trust came up explicitly during two of the four presentations. In the Millennium villages project, one of the major challenges was CHWs “failure to explain the tool to household members”. In India, PCI found that the majority (~70%) of beneficiaries of a microfinance program felt the mobile phone based solution would increase trust.
During the Q&A Ashifi Gogo probed further – he asked about the perceptions people had about their health information when it was collected using mobile devices. The panel answers were largely focused on technological measures to safeguard the data, so I thought it appropriate to mention Karen Cheng’s Angola study, last featured in the Bulletin of the WHO. I’m happy that I did because Patricia Garcia brought up a recent study she co-authored (Bernabe et al., 2008), a study that I didn’t know about, and a study that showed the opposite result. This Peruvian study examined the quality of data using PDAs to collect sensitive data compared to paper-based surveys. The results: there was a high level of agreement among PDA and paper-based responses and there were fewer inconsistencies within individual respondent surveys. [Note: I've only skimmed the paper this afternoon and plan to read it more carefully soon.]
One of the key challenges Mitul Shah highlighted during his talk was better understanding the relation between people and technology. In his words, we need more “basic market research” and “impact evaluations”. Understanding how cultural perceptions of technology impact social desirability bias seems to be a critical gap since we’ve focused so many of our efforts on issues like cost-effectiveness, efficiency, and technological interoperability. That the Cheng and Bernabe studies showed such different results indicates that context matters. It’s not just a matter of phone (PDA) vs no-phone (np-PDA) – culture, age, gender all matter, too. If we can begin to understand these local factors, we can plan accordingly – e.g. how we train data collectors to prepare survey respondents – to achieve the gains we want in efficiency and cost.

Indeed trust is still a big issue in both emerging and developed countries when it comes to digital content and interactions. Safeguarding privacy of patient data, being a central concern in your Q&A panel, can only be solved when these same users control their data and have their legal rights protected though using digital technology.
GTC a non-profit international organisation based in Sweden, has developed a policy-based solution to protect the rights of patients and to bring legal support for users.
http://www.globaltrustcouncil.org
This solution to trust in digital interactions is not based on technology. It offers a true legal balance between traditional paper based administration and digital administration. It would help achieve the efficiencies and costs cuttings for both the service providers and the patients.
HG/
[...] Trust & social desirability in m-health Jaspal explores the trust theme from this presentation that featured GHP partners, The Millennium Villages Project, Project Concern International and United Nations Foundation. [...]